TB cure is still a distant reality for these villagers
By Amit Dwivedi
March 22, 2010
Author is a development journalist and public health advocate. Recently he
visited the village to cover this story. He can be contacted at: amit.dwivedi.lko@gmail.com
Exclusive article on World Tuberculosis Day, March 24, 2010
Around 110 kilometers of state capital of Uttar Pradesh, residence of Ganga
Jamuni village are fighting against-tuberculosis (TB) since their three
generations. This is the third generation of TB cases in many families of
this village. ‘My forefathers have also died few years back due to TB. The
situation is same in most of the surrounding villages also. However, no step
has been taken forward by the district health department and primary health
care centre of Visheshwarganj,’ says Tirathram a tuberculosis patient, who
is suffering from TB for the last five years now.
In the past two year 8 villagers have lost their lives to TB and about two
and half dozen new cases of the disease have come up. Health facilities
barely 10 kilometers away yet death has become the fate of TB patients in
this village. Their abject poverty forcers them to discontinue their TB
treatment, giving away to multi drug resistant TB and the consequential
death.
“The problem is poverty, despite we providing medicines free of cost for a
month of the patients but these people fail to turn up even to collect free
medicines and for the necessary and routine medical test,” says Mr. Ashok
Shukla, Coordinator, DOTS and Sputum collection Centre, Bindra Bazar.
These patients not only facing TB related problem, ruthlessly they are also
facing stigma and discrimination in their society and in own family too.
Patients have been forced to live in a separate shanty outside the family
hut to keep him and the disease he carries, away. Family members fear that
he may also be a patient and may pass on to the TB infection to the kids.
The youngest TB patient in this village is 3 years old girl.
Ministry of Health and Family Welfare shows 100 per cent geographical
coverage of DOTS centre in India. However, in most of the rural areas DOTS
centres are not functional properly and often they are being closed. Mr.
Ashok Shukla further says that “Coordinators of DOTS centre are also not
fully committed for patients health, because they are not getting paid any
honorarium, remuneration etc. to serve their duty.”
TB is a disease of poverty affecting mostly young adults in their most
productive years. The vast majority of TB deaths are in the developing
world, and more than half of all deaths occur in Asia. Statistically, there
is 1 TB-related death that takes place every 18 seconds, 1 HIV death every
16 seconds, 1 child dies of pneumonia every 15 seconds and 1 smoking-related
death every 13 seconds. The enormous public challenge posed by the combined
epidemics of tobacco smoking, HIV, TB and COPD, is undoubtedly alarming.
More than 2 billion people or a third of the world's total population, are
infected with mycobacterium tuberculosis.
Tuberculosis is now the world's seventh-leading cause of death. It killed
1.8 million people
worldwide last year, up from 1.77 million in 2007. It is one of the three
primary diseases that are closely linked to poverty, the other two being
AIDS and malaria.
“We have a unique historic opportunity to stop tuberculosis, but we must
act now,” said Dr Marcos Espinal, Executive Secretary of the Stop
Tuberculosis Partnership. “The challenge now is for people to work together
in putting the plan into action, in order to stop one of the oldest and most
lethal diseases known to humanity. This plan tells the world exactly what we
need to do in order to defeat this global killer.”
The 2010 World TB Day campaign with its slogan “On the move against
tuberculosis Innovate to accelerate action” is focused on individuals
around the world who have found new ways to stop TB and can serve as an
inspiration to others. The Forum of International Respiratory Societies
(FIRS) convening at the 40th Union World Conference on Lung Health in
Cancun, Mexico, declared the year 2010 as the Year of the Lung. This was
done to recognize that hundreds of millions of people around the world
suffer each year from treatable and preventable chronic respiratory
diseases.
Lets hope that the government and non-governmental organization will not
only raise their voice for the sake of TB patients till World Tuberculosis
Day. They will go beyond and will become a ray of hope for these unheard
patients also.
Posted on: March 22, 2010 11:38 AM IST
|